Enhanced rights to health care.

We  all think that if we are ill the NHS will care for us.

SOmetimes that happens.

SOMETIMES it doesn't happen!

A big problem in the NHS is that patients are turned away due to internal politics of health trusts, discrimination, the over inflated ego of the individual doctor, punishment for challenging  medical opinion when it is wrong and sadly, sometimes because of ignorance on the part of NHS employees.

When things go wrong because of this it comes to public attention if the patient dies  as a result or suffers immediate and devastating effects.

The rest of those turned away are left to struggle on and hope that things don't get worse.

Action is needed NOW to ensure that this sort of thing stops – patients shouid be able to log their incident with the service provider and the doctor or other clinician should be required to make a written explanation of their decision.

Why is this idea important?

We  all think that if we are ill the NHS will care for us.

SOmetimes that happens.

SOMETIMES it doesn't happen!

A big problem in the NHS is that patients are turned away due to internal politics of health trusts, discrimination, the over inflated ego of the individual doctor, punishment for challenging  medical opinion when it is wrong and sadly, sometimes because of ignorance on the part of NHS employees.

When things go wrong because of this it comes to public attention if the patient dies  as a result or suffers immediate and devastating effects.

The rest of those turned away are left to struggle on and hope that things don't get worse.

Action is needed NOW to ensure that this sort of thing stops – patients shouid be able to log their incident with the service provider and the doctor or other clinician should be required to make a written explanation of their decision.

Freedom from the public’s lack of understanding of the Motability schemes!

This site and the spending challenge site have more than adaquately revealed that the general public do not undrestand or have sufficient knowledge of the motability scheme.

This is evident in crass comments about 'Free cars' and the type of cars available.

It is also evident in the fact that none of the posters mention the fact that Motability is NOT a government department and is not funded by the government!  They also fail to notice that the main gainers in this scheme are the banks – they make a hefty profit from the schemes!

So we need to educate the public to the facts!

1)The cars are NOT free.

2)Those who use the scheme PAY for their cars – they lease the cars.

3) They type of car they choose depends on their needs.  They may need a larger car to fit a wheelchair and other equipment in.  They may need a 'higher' car such as an MPV or people carrier to combine wheelchair space and ability to get in and out of the vehicle.

4) More expensive cars mean that the disabled person is paying an advance payment (non refundable) to cover the cost difference.

 5) Advance payments are calculated according to the projected sale price that motability will recoup when the car is sold at the end of the lease period – the disabled person does not receive any of the money recouped.

6)Nil advance payment is usually applied to smaller and cheaper cars – with some car manufacturers occasionally having 'special offers' on larger vehicles which reduces the advance payment for a short period of time – this is a marketting policy from the manufacturer who wants more motability customers.

7) all the stories posted on here and on SC about people conning the system are rooted in jealousy of the cars – without considering the disability and the pain and hassle that goes with it.

So we need more education of the public on the reality of motability – this will reduce the harrasment of disabled people and save the public from making crass statements and accusations which only embarress them through their own lack of knowledge.

 

This could easily be achieved by educating the media so that they get their facts right and requiring every newspaper (national and local) to print a prominent full page explanation of the FACTS. (written by motability and approved by a representative group of their paying customers).  Equally any television program that 'investigates' motability abuses should be required to include an explanation of the facts in relation to the workings of the scheme.  Additionally car manufacturers and dealers should have to follow rules regarding motability advertising – their adverts should make it clear that disabled people PAY for their cars rather than creating the illusion that the cars are free when they are not.

Why is this idea important?

This site and the spending challenge site have more than adaquately revealed that the general public do not undrestand or have sufficient knowledge of the motability scheme.

This is evident in crass comments about 'Free cars' and the type of cars available.

It is also evident in the fact that none of the posters mention the fact that Motability is NOT a government department and is not funded by the government!  They also fail to notice that the main gainers in this scheme are the banks – they make a hefty profit from the schemes!

So we need to educate the public to the facts!

1)The cars are NOT free.

2)Those who use the scheme PAY for their cars – they lease the cars.

3) They type of car they choose depends on their needs.  They may need a larger car to fit a wheelchair and other equipment in.  They may need a 'higher' car such as an MPV or people carrier to combine wheelchair space and ability to get in and out of the vehicle.

4) More expensive cars mean that the disabled person is paying an advance payment (non refundable) to cover the cost difference.

 5) Advance payments are calculated according to the projected sale price that motability will recoup when the car is sold at the end of the lease period – the disabled person does not receive any of the money recouped.

6)Nil advance payment is usually applied to smaller and cheaper cars – with some car manufacturers occasionally having 'special offers' on larger vehicles which reduces the advance payment for a short period of time – this is a marketting policy from the manufacturer who wants more motability customers.

7) all the stories posted on here and on SC about people conning the system are rooted in jealousy of the cars – without considering the disability and the pain and hassle that goes with it.

So we need more education of the public on the reality of motability – this will reduce the harrasment of disabled people and save the public from making crass statements and accusations which only embarress them through their own lack of knowledge.

 

This could easily be achieved by educating the media so that they get their facts right and requiring every newspaper (national and local) to print a prominent full page explanation of the FACTS. (written by motability and approved by a representative group of their paying customers).  Equally any television program that 'investigates' motability abuses should be required to include an explanation of the facts in relation to the workings of the scheme.  Additionally car manufacturers and dealers should have to follow rules regarding motability advertising – their adverts should make it clear that disabled people PAY for their cars rather than creating the illusion that the cars are free when they are not.

Freedom From The Tyranny Of Wheelchair Services Departments!

Disabled people need freedom from the tyranny of wheelchair services.  Too many disabled people are provided with totally unsuitable wheelchairs, based on managerial policies and dictats.

It is time to give the power on wheelchair supply to the people who have to use the wheelchairs!

Close down all wheelchair services departments and create a local office with a few paper pushers who will order the chairs that are requested and dispatch the repair staff when they are needed.

To facilitate this create an on-line directory of all manufactured wheelchairs so that disabled people can contact the manufacturers direct, arrange a demo of the chair with the therapists who actually know them present, and select the most suitable chair for them.

Currently the therapists employed by wheelchair services departments do not know the real needs of their patients – they see them maybe once every five years and have no knowledge of their daily lives.  If the department manager states that patient X can have chair A (without ever having met the patient) then that is what is supplied and the therapists are unable to argue with their manager.

Why is this idea important?

Disabled people need freedom from the tyranny of wheelchair services.  Too many disabled people are provided with totally unsuitable wheelchairs, based on managerial policies and dictats.

It is time to give the power on wheelchair supply to the people who have to use the wheelchairs!

Close down all wheelchair services departments and create a local office with a few paper pushers who will order the chairs that are requested and dispatch the repair staff when they are needed.

To facilitate this create an on-line directory of all manufactured wheelchairs so that disabled people can contact the manufacturers direct, arrange a demo of the chair with the therapists who actually know them present, and select the most suitable chair for them.

Currently the therapists employed by wheelchair services departments do not know the real needs of their patients – they see them maybe once every five years and have no knowledge of their daily lives.  If the department manager states that patient X can have chair A (without ever having met the patient) then that is what is supplied and the therapists are unable to argue with their manager.

Freedom From Worries Caused By Government

WIth todays big press release regarding the changes to benefits immense concern is being caused to the most vulnerable members of society by the lack of detailed information.

The press release states major changes (some of which may be good!) but gives no details.  This is just like the situation with the Budget referrals to changes in housing benefit – no details.

When such announcements are made the proposed finer details should be made available immediately in order to avoid the worry this causes to many people.  Not releasing the finer details is tantamount to bullying as the most vulnerable members of our society are then terrified of what the future holds for them.

Why is this idea important?

WIth todays big press release regarding the changes to benefits immense concern is being caused to the most vulnerable members of society by the lack of detailed information.

The press release states major changes (some of which may be good!) but gives no details.  This is just like the situation with the Budget referrals to changes in housing benefit – no details.

When such announcements are made the proposed finer details should be made available immediately in order to avoid the worry this causes to many people.  Not releasing the finer details is tantamount to bullying as the most vulnerable members of our society are then terrified of what the future holds for them.

Amend The Data Protection Act To Allow Unrestricted Access To Information Held About You.

Amend the Data Protection Act to prevent anyone from blocking your access to information they hold about you.

Every authority that holds information about you should have an office open to the public where you can access your file/s on demand.  If you can show photo ID such as a passport or driving licence your file should be made available for viewing immediately.

Why is this idea important?

Amend the Data Protection Act to prevent anyone from blocking your access to information they hold about you.

Every authority that holds information about you should have an office open to the public where you can access your file/s on demand.  If you can show photo ID such as a passport or driving licence your file should be made available for viewing immediately.

Change Benefit Laws To Give Carers A Fair Deal.

The rules surrounding benefits restrict the lives of carers and need urgent change.

I suggest:

Carers who are unable to take up paid employment because of their caring role should be paid at a rate that reflects the work they do and the hours they put in.  This would remove carers from poverty and the restrictions from their lives – reflecting their true worth and their contribution to society.

The adjustment of the 35 hour per week rule with various rates of payment according to the amount of time spent caring.

The introduction of a grant system to allow carers who cannot work outside the home to start up businesses where they can work from home.  This needs to include  the ability to continue to claim benefits for the first two years in order to give the business time to reach a profit making level.

Why is this idea important?

The rules surrounding benefits restrict the lives of carers and need urgent change.

I suggest:

Carers who are unable to take up paid employment because of their caring role should be paid at a rate that reflects the work they do and the hours they put in.  This would remove carers from poverty and the restrictions from their lives – reflecting their true worth and their contribution to society.

The adjustment of the 35 hour per week rule with various rates of payment according to the amount of time spent caring.

The introduction of a grant system to allow carers who cannot work outside the home to start up businesses where they can work from home.  This needs to include  the ability to continue to claim benefits for the first two years in order to give the business time to reach a profit making level.

Change Benefit Laws To Give Carers A Fair Deal.

The surrounding benefits restrict the lives of carers and need urgent change.

I suggest:

Carers who are unable to take up paid employment because of their caring role should be paid at a rate that reflects the work they do and the hours they put in.  This would remove carers from poverty and the restrictions from their lives – reflecting their true worth and their contribution to society.

The adjustment of the 35 hour per week rule with various rates of payment according to the amount of time spent caring.

The introduction of a grant system to allow carers who cannot work outside the home to start up businesses where they can work from home.  This needs to include  the ability to continue to claim benefits for the first two years in order to give the business time to reach a profit making level.

Why is this idea important?

The surrounding benefits restrict the lives of carers and need urgent change.

I suggest:

Carers who are unable to take up paid employment because of their caring role should be paid at a rate that reflects the work they do and the hours they put in.  This would remove carers from poverty and the restrictions from their lives – reflecting their true worth and their contribution to society.

The adjustment of the 35 hour per week rule with various rates of payment according to the amount of time spent caring.

The introduction of a grant system to allow carers who cannot work outside the home to start up businesses where they can work from home.  This needs to include  the ability to continue to claim benefits for the first two years in order to give the business time to reach a profit making level.